Patients & Families Resources

Our Pledge to Patients

At SwanBio, we believe forward progress for patients like you comes from a deep understanding. We strive to understand the challenges you face from inherited spinal cord-related disorders, we are dedicated to developing medicines that can make a difference in your life, and we are working with great urgency to make a meaningful impact.

We believe it is imperative to collaborate closely with you – and all patients – as well as advocacy organizations who represent you. We pledge to constantly listen and learn from your real-world experiences as we forge ahead to pioneer new medicines.

Patients are our inspiration and motivation to pave a path where there are few or no treatment options.

For any inquiries related to SwanBio’s clinical trials or studies, please email us at or call us at +1 (267) 417-6356. Click here to learn more about the CYGNET Study.

Resources for the AMN Community

Our experience includes strong relationships with patients and patient advocacy communities. If you or a loved one has questions about AMN or other spinal cord-related disorders, the following organizations can provide helpful information.